September is Cortical Visual Impairment Awareness Month. This visual impairment affects children from ages one to three years in the United States and in other developed countries. Cortical Visual Impairment (CVI), can develop before, during or after birth. Early intervention after diagnosis is imperative.
Cortical Visual Impairment, also referred to as cerebral visual impairment, neurological visual impairment and more simply, brain damage, is when a patient suffers a brain injury. Visually, they can see, but the connection between the parts of the brain that interpret images no longer communicate with their eyes. When diagnosed with CVI, children show abnormal visual responses which can’t be attributed to the eyes. Disfunction in the part of the brain that manages visual communication is responsible for this disconnect.
According to The National Eye Institute, CVI can continue into adulthood. Adults can develop CVI, especially after a traumatic brain injury or stroke. However, they don’t technically have CVI because it’s acquired later in life. Veterans who experience visual problems because of combat injuries are at higher risk for Acquired CVI. Locating visual rehabilitation services can aid these folks in making the most of their vision.
Boston Children's Hospital prefers to use the term “cerebral” rather than “cortical” when diagnosing this impairment. Blindness in these children isn’t singularly perpetuated by this one part of the brain. CVI can be caused by shaken baby syndrome or accidental head injuries. The child can also suffer neonatal hypoglycemia infections such as meningitis. Metabolic disorders and epilepsy can also cause blindness.
Diagnosing CVI is difficult. If you suspect your child has visual problems, they’ll need a comprehensive eye exam to determine if the problem is with their eyes. If this initial examination doesn’t find physical eye issues to explain the symptoms, the problem could be with the brain.
When seeing a specialist familiar with CVI, the pediatric neurologist or a neuro-ophthalmologist may request a medical history or a brain scan.
Some common symptoms clinicians look for are:
Behaviors reported by parents and educators include:
Variable and inconsistent visual responses to the same stimuli
Higher responses to more familiar stimuli than unfamiliar
Fatiguing from visual tasks
Peripheral vision dominates when reaching
Colored stimuli showcase higher response than other stimuli
Visual attention is held longer for moving objects
Vision for navigation is surprisingly better than expected
Difficulty seeing an object or image in a busy room or background
Reduced responses to visual stimuli when distracted by music or conversation or when they’re touched.
It should be noted if a child exhibits one or two of these behaviors, they don’t always have CVI. However, if your child has suffered a brain injury and does exhibit these behaviors or symptoms, getting them examined immediately is crucial.
Unfortunately, there is no cure for CVI. However, rapid intervention with visual rehabilitation therapy can help. The good news, however, is some children experience improvement in their vision. School-aged children with CVI will need a functional assessment performed by a Teacher of the Visually Impaired (TVI). A personalized treatment plan will be designed based on the teacher’s observations and will include what stimulation will benefit them. Whether it be mostly touch, sound, or visual stimulation–or all three–this plan will assist the child in using what vision they do have.
Though difficult to diagnose and untreatable, children living with this permanent visual impairment can learn to grow and play. They may require different stimulation to interact with others, but the world can still be accessible.
If your child or loved one has CVI or any other visual impairment, having them involved with other youth can help them feel included. Visit our website, Outlook Enrichment, to learn more about your adaptive tech programs, events, and other resources.